Share The Caregiving, Inc.
The SHARE THE CARE model provides a road map on how to take a group of ordinary individuals (comprised of friends, relatives, neighbors, coworkers, and acquaintances) and turn them into a "caregiver family" to provide individuals and families with the help they need to meet the daily challenges of caregiving.
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The National Family Caregivers Association (NFCA)
A grass roots organization that educates, supports and empowers families who care for chronically ill, aged or disabled loved ones. NFCA reaches across different diagnoses, relationships and life stages to address the common needs and concerns of all family caregivers.
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Family Caregiving 101
This site was created exclusively for people who are caring for loved ones. It is designed to assist the caregiver with practical information and moral support.
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Well Spouse Association (WSA)
A national, not for profit membership organization that gives support to wives, husbands, and partners of the chronically ill and/or disabled. Through information and support groups, the organization address issues common to family caregivers: anger, guilt, fear, isolation, grief, and financial threat.
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National Respite Network (ARCH)
National Respite Coalitionand the National Respite Locator Service help parents, caregivers, and professionals find respite services in their state and local area.
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CaringRoad
CaringRoad is an Internet community for caregivers featuring information, personal stories, and advice. The CaringRoad Support Network helps caregivers meet other caregivers, based on geography, diagnosis or family relationship. Founded by Karen Mintz, a New Jersey documentary producer. By phone contact 609-773-0773.
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Caregiver Media Group
Provides information, support and guidance for family and professional caregivers. Publishes Today's Caregiver Magazine and offers a web site with topic-specific newsletters, online discussion lists, chat rooms and an online store.
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Personal Care Attendants:
Information from Craig Hospital on finding, hiring and keeping reliable PCAs. From the home page, click on Health and Wellness under the Spinal Cord Injury section, then click on Educational Brochures. Scroll to the Caregiving section.
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Spinal Cord Injury Caregivers
Yahoo Internet forum, a place to share information and to support other caregivers who are caring for people with SCI.
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Shepherd's Centers of America (SCA)
An interfaith, not-for-profit organization that coordinates nearly 100 independent Shepherd's Centers across the U.S to help older adults remain independent in their own living situation.
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The Center for Family Caregivers
The Center for Family Caregivers and Denise Brown operate Tad Publishing Co., which produces books, newsletters and other materials for families and health care professionals who care for chronically ill or disabled family members.
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The Family Caregiver Alliance
The lead agency in California's system of Caregiver Resource Centers and operates the National Center on Caregiving to advance the development of support programs for family caregivers in every state. For residents of the greater San Francisco Bay Area, FCA provides direct support services for caregivers of those with Alzheimer's disease, stroke, traumatic brain injury, Parkinson's and other debilitating brain disorders that strike adults.
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The Caregivers Advisory Panel
Collects confidential information on the opinions and needs of family caregivers to help health care products manufacturers and service providers to create innovative products, services, programs and support for America's caregiving families. |
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